This summer has been filled with more travel and family visiting than usual. I just returned from a camping trip with most of my husband's extended family. It's difficult to express how grateful I am for their willingness to sacrifice their own comfort to enable me to gather with them. I'm truly thankful for their Christlike hearts and valiant efforts to include me.
The trip was full of good family visiting times, but wasn't without its challenges. I had a significant chemical exposure (mosquito fogging) that introduced a new symptom to my list. Other challenges included an air conditioner that gave out during a traffic jam, a mix-up regarding a campsite reservation, a sick family member, and fearless skunks.
One challenge was quite unexpected and involved the use of a campground pavilion. We were a large group and had planned to gather under the shelter during our last day (a rainy one) to play games and visit. The campground office said it was fine as long as there was no other planned activity there.
Unfortunately, the campground office isn't the only entity involved with the pavilion. As we eventually learned, a group of volunteers (I believe they're called "Friends of the Shelter") built the facility. As we also learned, they are quite protective of it. We were confronted twice, at two different times during the day, with volunteers who were evidently very unhappy that we were using their building. I'm not sure I'll ever forget the sight of the second volunteer. He stood watching us, with a red face and semi-balled fists, looking like he would really like to hit someone. To be fair, he did eventually decide to be friendly and at the end of the conversation said, "I'm not trying to run you out," which at the beginning he seemed clearly to want to do.
It's hard to say exactly when the conversation took a turn and became more positive. Perhaps it was the moment when my husband asked simply, "So is this shelter just supposed to be for the volunteers?" Maybe that's the point where the gentleman remembered why the pavilion was built. Isn't a shelter in a campground supposed to shelter campers? Isn't being "friends of the shelter" a goal that's underneath the greater one of being friends of the humans?
The encounters seemed ludicrous at the time and still seem so as I write about them. I can't help but think, however, how similar they are to the way many people with MCS experience the church. Chemically sensitive people want to find shelter from life's storms and wonder why they aren't welcome in churches that were theoretically built for that purpose. They wonder how so many church members become "Friends of the Church Building" (who focus on making it more beautiful than healthy) rather than friends of people created in God's image who just want to enter the building without getting sick.
I correspond with many fellow MCS sufferers. One recently told me a familiar story of trying to communicate with her pastor about creating a church environment that's safe for her and other chemically sensitive members. She isn't making much progress. At one point she wrote, "We are being made to feel like a bother for wanting to come to church."
I think she summed it up well. Is that the message the church really wants to send? It's bad enough to send that message to chemically sensitive church members, but truly heartbreaking to send it to seekers. When people develop MCS or any chronic illness, they tend to become more open to spiritual realities and more hungry for spiritual truth. God is surely not pleased if people hungry to know Him can't enter a Christian church building because of the product choices others make.
Mark 11:15-17 tells this story: When they arrived back in Jerusalem, Jesus entered the Temple and began to drive out the people buying and selling animals for sacrifices. He knocked over the tables of the money changers and the chairs of those selling doves, and he stopped everyone from using the Temple as a marketplace. He said to them, “The Scriptures declare, ‘My Temple will be called a house of prayer for all nations,’ but you have turned it into a den of thieves.”
Why was Jesus angry? I imagine there were a number of reasons. Surely he was angry that commerce seemed to be taking precedence over spiritual pursuits. He was undoubtedly also angry, however, that the activities going on inside the building kept people who wanted to worship from being able to do so. The temple was designed with a series of courtyards and some people were allowed to go deeper into the complex than others were. Those who could simply walk by the marketplace activity to enter another court weren't impeded by the chaos. For those who could go no farther than the courtyard where the buying, selling, and money changing was going on, however, worship was a significant challenge. I imagine Jesus was angry that those who had no limitations on their ability to worship put barriers in the way of those who did.
I understand and appreciate the need to be stewards of and care for buildings, whether they’re campground pavilions or churches. I pray, however, that we never forget why they were built. They're for people.
The Limitations of Learning from Experience
I'm currently in the middle of a rather frustrating experience with my bank related to a fraudulent purchase made on my debit card. Unfortunately, the charge was to a virus software company, which has led bank employees I've spoken with to insist that the charge is a renewal fee. I've been told that the company charges renewal fees that people forget they've authorized "all the time."
I'm sure it's true that many people do forget they've authorized renewals and get surprised when charges appear on their bank statements. I'm brainfogged often enough that I can also imagine finding myself in a similar situation at some point. However, that pattern doesn't fit this circumstance. I didn't place the order (which was not for virus protection renewal), but someone else using my card number did. Fortunately, the software company agrees with me, even if the bank is still unconvinced. Because bank employees have learned a likely scenario from previous experiences, they've evidently concluded that no other option is possible. Sometimes learning from experience is not an entirely positive thing.
It occurs to me that the same dynamic often plays out in the world of chemical sensitivities. It's often difficult for those of us with MCS to convince others that our reactions are real because our experiences differ so greatly from their own. People who've never had conscious negative reactions to dryer sheets, for example, may easily conclude that "Dryer sheets can't hurt people" rather than, "Fortunately, my detoxification system is currently strong enough to keep me from having immediate symptoms from this."
It's certainly natural to learn from personal experience and to be vaguely suspicious of accounts of experiences that don't match our own history and reality. Even those of us with MCS can fall into that mindset at times. Let's say, for example, that I'm seriously reactive to Substance A, but can handle, to a certain extent, Substance B. If I hear fellow MCS sufferers express big problems with Substance B, I sometimes find myself thinking thoughts like "Maybe they could handle it if they would _________ ." (Fill in the blank with whatever applies: use more ventilation, wear a mask, try a different brand, etc.) Fortunately, I generally catch these thoughts early and discard them. The fact that I have them at all, however, helps me understand why healthy people so often negate the reality of chemical sensitivity and make some of the dismissive remarks they do.
The truth is that people can experience the same sensory environment in entirely different ways. A tall adult will view a parade differently than the small child standing behind him. A blind person at the same parade will experience it differently than someone who is deaf.
The Biblical book of 2 Kings shares a story of two people who had differing experiences of the same situation. One morning the prophet Elisha and his servant awakened to find their city surrounded by hostile forces. The servant saw only the enemy, but Elisha saw the forces God had sent to fight for them. Elisha prayed that his servant's eyes would be opened and that they would both see the same reality.
Those of us with chemical sensitivities often pray a similar prayer. We beg for eyes to be opened and for the MCS world to be seen and understood. We know our condition seems strange and that our physical reactions to chemicals are hard to believe. We know our account of how we experience the world around us seems foreign and bizarre.
None of that, however, changes the fact that our experiences and reactions are very real. Please believe us. We have no reason to lie and it hurts when we're told that we're deluded, exaggerating, excessively fearful or just lack faith. Trust us, listen to us, and let us serve as a warning about the toxic nature of products that are used every day. Please don't just learn from your own experiences. Learn from ours, too.
Do It for Your Future Grandkids
There are many reasons that the issue of chemical toxicity tends not to be taken very seriously by most people. Perhaps the most natural and common reason is that the issue doesn't feel personal. People don't associate their health symptoms with chemical exposures and generally assume they're handling everyday toxins just fine.
Yes, there are certainly biological differences in the way people's bodies process chemicals, and some people do have stronger detoxification systems than others. I truly believe, however, that everyone alive today is being affected by chemicals in the everyday environment to one degree or another. We're also evidently affecting the next couple of generations as well.
Chemicals can impact the human body in a number of different ways. They can directly affect organs and systems, they can mutate genes, or they can change the way genes express themselves. The latter are known as epigenetic changes and, like mutations, can be passed on to future generations.
A recent article entitled How Your Great Grandmother’s Chemical Exposures May Affect You discussed a study in which exposure to common chemicals was associated with ovarian diseases that lasted for three generations. We've long known that when a pregnant mother is exposed to certain chemicals that her child may be affected. It's becoming increasingly clear, however, that an exposure may not only affect her child, but her future grandchildren, and even their children as well. (There is also a growing awareness that a father's exposure to chemicals before a child is conceived can have significant implications. A World Health Organization publication, for instance, notes that "exposure of either father or mother to pesticides before conception . . . has been associated with an increased risk of fetal death, spontaneous abortion and early childhood cancer.")
An article entitled Epigenetics: Chemicals Turn Genes On and Off at the Wrong Times notes that epigenetic changes have been linked to a wide range of diseases and conditions, including heart disease, diabetes, obesity, breast cancer, Alzheimer's disease, prostate cancer, Parkinson's disease, learning disabilities and asthma. This is serious business. It's easy for those of us past childbearing age to think the issue isn't relevant for us, but the truth is that our product choices affect others.. The personal care products we choose and the cleaning supplies, bug sprays and other products we use in our homes and churches may cause significant harm to the people around us and to individuals yet unborn. We are interconnected. Our product choices matter.
MCS Prevalence: Dissecting the News
There has been a bit of media coverage this week of a recent study noting that 20 percent of low-income patients screened by two Texas family medicine practices were found to have "chemical intolerance" or Multiple Chemical Sensitivity (MCS). A number of news outlets, including CNBC, Fox News, and the Chicago Tribune reprinted a Reuters article on the study. As usual when MCS-related news is reported, there are aspects of the coverage to both applaud and bemoan.
Here's my take on the study and the coverage:
The essential bit of news is that a significant percentage of patients recruited from the waiting rooms of two family medicine clinics were given a screening survey and found to meet the diagnostic criteria for MCS. I'm glad that the prevalence of the disorder is being reported, because MCS is far more common than most people imagine, and an awareness of the size of the issue may spur action.
The study found a prevalence rate of 20% among the patients examined. This is, as the report suggests, "sizeable,” but it isn't a total surprise or completely out of line with previous findings. Previous studies of the general population have found MCS prevalence rates between 11 and 33%. Studies of specific populations have found much higher rates. A study of Gulf War veteran outpatients, for example, found a rate of 86%.
The report noted that the patients in the study were low-income and stated that previous studies focused on "higher-income, white people." If that's true of previous studies, I'm unaware of it. In fact, this report of a prevalence study noted that "both allergy and chemical sensitivity were distributed widely across age, income, race, and educational groups" and one published in the American Journal of Epidemiology stated that "marital status, employment, education, geographic location, and income were not predictive of reported chemical sensitivities ." Studying sub-groups for rates of chemical sensitivity has merit, but I hope all people will take the issues seriously and realize that no one is immune.
The author of the Reuters report states that an MCS diagnosis is "controversial." I suppose that's true, in the strictest sense of the word, but only because of the special interests with deep pockets that work hard to make it so. See the previous post titled “The Misinformation Campaign” for more information.
The author notes that there is no agreement on the cause of MCS. That is also technically true, I suppose, because companies that manufacture chemicals don't "agree" (at least publicly) that their products have anything to do with the symptoms MCS patients experience. It's very reminiscent of previous denials by tobacco companies that their product had any association with lung cancer.
The study found that the patients with chemical sensitivity had higher rates of depression and anxiety than others. This is a touchy subject among many with MCS, because those who attempt to disprove the validity of the condition generally try to paint it as a mental disorder. Fortunately, the report quoted lead researcher Dr. David A Katerndahl who noted that "some people might become depressed or anxious because of their chemical intolerance symptoms." Of course we do. I imagine that people with cancer or those injured in automobile accidents also have higher rates of depression and anxiety. A study published in the journal Environmental Health Perspectives notes that only 1.4% of patients with chemical sensitivities had a prior history of emotional problems, but 37.7% developed emotional problems after the physical symptoms emerged. See this previous post for an overview of research pointing to physical, rather than psychological causation.
Only one-fourth of the patients found to have MCS had been previously diagnosed. This is an important point. If people don't associate their symptoms with exposures, they don't know to avoid (or at least attempt to avoid) substances that cause their distress. Katerndahl also pointed out that chemically sensitive patients are often intolerant of many medications, which is important for their physicians to understand.
I found a bit of good news in Katerndahl's statement that among primary care doctors there is a growing acceptance of the validity of MCS. I pray that acceptance turns into action and that doctors will work to make their offices and clinics less toxic and more chemically safe for all of their patients.
The suggestion for those with MCS is that they get a referral to go see an allergist. This is, unfortunately, not likely to be of much help to most who suffer from chemical sensitivities. Although people can have both allergies and MCS, true allergies involve an immune response that differs from the detoxification abnormalities common in MCS. Appropriate and helpful medical care for those with chemical sensitivities is extremely hard to find. An interesting study of treatment efficacy found that survey participants with MCS had consulted an average of 12 healthcare providers each and found 3 to be helpful. They had spent over one-third of their annual income on health care costs. The survey rated the perceived efficacy of 101 treatments and found the three most highly rated interventions to be creating a chemical-free living space, chemical avoidance, and prayer.
Knowing how many people suffer from MCS is important. The real question, though, is how many is too many? How many must suffer before we make changes in our product choices? How many people is it OK to shut out of our churches? These are questions that deserve serious consideration.
How to Know if a Product is Safe
People often ask me about the safety or toxicity of various products. Sometimes I know the answer and sometimes I don't. It isn't easy to keep up with the barrage of new offerings continually entering the marketplace, and since formulations change constantly, even a product that was safe one week may not be so the next.
It's important for consumers to be aware of the chemical safety of the products they use, but manufacturers certainly don't make that task easy. There are large loopholes in labeling laws, and a great deal of marketing hype that is often difficult to decipher. Manufacturers have responded to the rising demand for safer products in varying ways. Some have introduced less toxic products into their consumer lines (while generally continuing to sell their toxic standard-bearers) and others have simply re-branded products as "all-natural," "non-toxic," or "green." These terms are used indiscriminately and have very little meaning. Consumer Reports' Greener Choices website has a helpful label search function which notes, for example, that the "non-toxic" label is not meaningful, verified, consistent, or free from conflict of interest.
The term "green" is especially problematic. A green product is purported to be better for the environment than standard fare, but better for the environment does not necessarily mean better for human health. Recycling a toxic product, for example, does not make it less toxic. People who are chemically sensitive often call themselves "canaries" after the birds that miners once took with them to warn of harmful gases. Perhaps we should adopt the color of the canary as a new standard and look for products that are not just green, but also yellow, or safe for human use.
Although it is difficult to get all the information needed to make truly informed product choices, there are some general rules of thumb. Products purchased at health food stores or from companies that cater to the health-conscious are generally safer than products purchased at major retail outlets, although there may be exceptions. There are also websites that help provide information and there are clues to toxicity even on imperfect labels. Reading labels is important and it is wise to note the following warnings or listed ingredients:
Fragrance - Products do not have to have any odor at all to be toxic (carbon monoxide, for example, is both odorless and deadly), but synthetic fragrances are almost always problematic. (For more information, see the previous post entitled Fragrance Facts.) Heavy fragrances are often added to a product to cover the odor of other objectionable chemicals. I've recently begun seeing the word "aroma" in ingredient lists and assume it is simply another term for synthetic fragrance. If anyone knows otherwise, please let me know.
Keep out of reach of children - A product containing this warning is obviously hazardous to some degree, and is likely to be harmful for adults as well.
Use in a well ventilated area - Abundant ventilation is always a good idea, but seeing the advice on a product label may indicate that another product is a safer choice.
Wash hands well after using - Obviously, washing hands frequently is a good idea for many reasons, but seeing the advice on a product label may mean that the product contains toxic chemicals likely to be absorbed through the skin.
The following websites are helpful (though sometimes hard to navigate) resources for evaluating aspects of safety for certain products:
HealthyStuff.org evaluates the safety of products in many categories, including children’s goods, pets, cars, and apparel.
The Household Products Database is offered by the U.S. Department of Health and Human Services and provides health and safety information on household products of many kinds, including yard, home maintenance, auto, home office, and arts and crafts.
Skin Deep is a searchable safety guide to cosmetics and personal care products.
Making informed product choices is more challenging that it needs to be, but it isn't impossible. Sometimes a quick internet search using the product name and the word "toxic" is all that is needed to obtain good information. A search for "non-toxic alternatives to . . ." can also yield helpful results at times. No matter the inconvenience, educating ourselves about product toxicity and making safer choices is worth the effort. The seemingly small choices we make in the products we use can have profound and life-altering consequences, not only for ourselves, but also for those around us. Let's value our health and the health of those who share the air enough to take this issue seriously.
How Beautiful
I've just returned from a vacation trip to Yellowstone National Park. It's very difficult for me to stay in motels or in other people's homes, so my husband and I travel in a 29-year-old campervan. The campervan makes travel possible, but not completely easy. Taking a trip always involves unavoidable chemical exposures, but most of the time the benefits of getting away make it worth the physical cost.
I've been to Yellowstone before, and my soul was as fed by the vast unspoiled beauty this time as it was on my previous visit. This trip had an added bonus, though. This time I was able to attend an outdoor worship service. Actually, I got to attend two: one Sunday morning and another one later that evening. The evening service was a bit problematic because of bug repellant, which many people applied at the same time and in close proximity to me. I moved away from the group, but was able to stay for the service, and was grateful for that.
Fortunately, the chemical exposures were very low for the morning worship gathering. There was a lot going on in my head and heart during that service and I found myself getting very emotional. Primarily I felt gratitude and joy for the opportunity to worship with others, since it's a very rare privilege for me these days.
As I sat in the midst of strangers from all over the country who had come together because of a common love for Jesus, I kept thinking of a line from an old Twila Paris song: "How beautiful is the body of Christ." Yellowstone is full of natural beauty, but I had to agree, looking around at the other worship participants representing parts of Christ's body on this earth, that they were beautiful, too.
There were also a lot of memories coming to the surface that morning. The summer after my freshman year in college I served as a summer missionary in a tourist area, and one of the things I did was to lead worship services in a number of campgrounds. The morning service at Yellowstone was led by a college girl, and when I looked at her I saw a younger me.
I began to wonder what I would tell the younger me, if I could. I wasn't naïve or untouched by life's challenges at that age. My mother died when I was 13, so I already knew that life could be hard. I never imagined MCS, though. I never imagined being shut out of church.
I think what I would tell my younger self is that corporate worship is a valuable treasure that shouldn't be taken for granted. I would say that providing worship services in unconventional settings is an important ministry and well worth the effort. I would thank the younger me for being part of providing worship opportunities for all sorts of people, some of whom might, like the current me, have no other options.
Would the younger me listen to the current me if I told her to value and store up in her heart every element of every worship service she was able to attend? Probably not. At the time, the ability to freely worship with others seemed to be a "given" rather than the privilege it really is. Now I understand. Now, when I'm able to worship with others I soak up all the moments of corporate grace and I treasure them. I truly treasure them.
The Misinformation Campaign
Many illnesses are misunderstood. People with MCS often have more than ignorance to fight, however. Some large and powerful corporations have reasons to make sure that chemical sensitivity isn't accepted as a valid condition and that chemical safety isn't called into question.
Dr. Ann McCampbell has written an excellent analysis of the situation entitled Multiple Chemical Sensitivities under Siege. I recommend it, not only for people curious about MCS, but for anyone interested in how public opinion about medical issues may be shaped. McCampbell details the activities of chemical manufacturers and the pharmaceutical industry. (Oddly, many drug manufacturers also make pesticides.) She writes about non-profit organizations with benign-sounding names and notes that the activities of one of them include the following:
publishing newspaper advertisements made to look like legitimate news stories stating that MCS “exists only because a patient believes it does and because a doctor validates that belief”
paying a medical journal to publish the proceedings of an anti-MCS conference which was partly organized by a firm owned by their executive director
sending anti-MCS literature to a state disability agency developing a report on MCS which included advice on how to avoid accommodating chemically sensitive employees
sending a representative to a Medicaid Advisory Committee meeting to urge that Medicaid benefits be denied for the diagnosis and treatment of chemical sensitivities
providing a representative to speak against MCS at a continuing medical education (CME) conference for physicians where he failed to disclose his industry affiliations as required by CME guidelines
sending a member to speak to the staff at an independent living center where he berated them for providing a support group for people with MCS.
In Isaiah 1:17, God instructs His people to defend the oppressed. There are people all over the world today being oppressed in significant, obvious, and life-altering ways. There may also, however, be less obvious forms of oppression occurring right before our eyes. In the realm of MCS, there is a great deal of very real suffering that is being caused by those with power, resources, and vested interests. Those who suffer from MCS need healthy advocates and defenders. Will you be one?
Fragrance Free Church Services
Although the issue of chemical contamination still isn't widely understood by the church in general, some congregations are making efforts to become less toxic and to accommodate their more chemically sensitive members. Churches approach the issue in different ways. Synthetic fragrances are often the chemicals that are most noticeable in the average church and to which the largest number of people recognize their own reactions. Because of that, some churches begin addressing the chemical toxicity issue by designating a fragrance-free area of the sanctuary. This isn't a perfect solution, but if the room is large enough and there is adequate ventilation, it can be enough accommodation for those with mild sensitivities. An article by the Catholic News Service highlights a Seattle church that took that approach.
Churches with multiple services sometimes designate one service as fragrance free. This works best if the fragrance-free service is held before the "regular" service is. If the order is reversed, chemicals from perfumed church members may still be present in large enough quantities to cause some people problems.
Other congregations strive to be fragrance free at all times. Some churches put notices in their bulletins or on their websites asking people to refrain from wearing perfume to church. An Oregon church does so and recently highlighted the issue in their newsletter.
A more comprehensive approach is to provide those who need it with a "safe room" which is separate from the rest of the congregation. These rooms are often similar to "cry rooms" designed for parents of small children. Ideally, these rooms should have an air supply that's separate from the rest of the church building and should be accessed through an outdoor entrance.
All approaches have their limitations, but all are positive steps to address the problem of chemical toxicity in the church. Any step to address the issue will be greatly appreciated by those who are chemically sensitive and may allow some people to attend church who would otherwise be shut out. Do we want people to be able to attend church if they wish? If so, we need to take this issue seriously.
Carpet Concerns
Since I've recently written about vinyl flooring, it seems appropriate to give equal time to some of the negative health effects associated with carpeting. Although some carpets are more problematic than others, none are a truly healthy flooring choice. Carpets have one set of problems when they're new and another set of problems when they've been around a while.
Most of the problems associated with new carpets are related to the chemicals used to manufacture them. In the book Staying Well in a Toxic World, author Lynn Lawson reports on an immunologist who was told by a major carpet manufacturer that there were “at least a thousand” chemicals used in synthetic carpeting. The padding and adhesives can also be sources of toxic emissions.
Carpet chemicals can cause a wide range of health problems. An article in the Townsend Letter for Doctors and Patients entitled Carpet Politics and Alternatives reported on studies in which a toxicologist exposed mice to carpet samples. The mice suffered neuromuscular, pulmonary, and sensory effects, and many of them died. Autopsies showed that the liver, brain, and kidneys had been affected.
Carpet manufacturers claim that their products have become less toxic since that time. Unfortunately, however, even if a truly non-toxic carpet were to be manufactured, it wouldn't remain that way for long once it was in use. Carpets act like a sponge, absorbing pollutants from the environment. An article reporting on tests of home carpeting noted that environmental engineer John Roberts found carpet dust to contain high levels of pesticides, heavy metals, and many other harmful chemicals. He observed that a typical carpet contains such high levels of toxic chemicals that it would trigger an environmental clean-up if found outdoors. Any cleaning or personal care product used in or brought into a building containing carpet has the potential to settle there and to be re-released when the carpet is disturbed. Easily cleaned flooring made of natural materials like wood, bamboo, or stone is generally the healthiest flooring choice.
Vetoing Vinyl
You may (or may not) have read about a recent study showing that certain chemicals in vinyl flooring are absorbed into the bodies of babies who live in homes that contain it. Many of the chemicals found in the flooring have been banned from children's toys and other products because of their known safety risks.
Most articles reporting on the study note that the chemicals are known to cause asthma and allergies. There are many other associated problems, however, as a 2009 report suggests. A team of U.S. and Swedish researchers found that children who lived in homes with vinyl floors were twice as likely to be diagnosed with autism. One of the study's authors noted that the correlation "turned up virtually by accident." Although the list of known negative health effects associated with vinyl compounds and other chemicals is large, there are undoubtedly many, many more connections between chemical exposures and health waiting to be accidentally discovered.
Vinyl isn't the only unwise flooring choice. Carpet, in particular, can have many problems of its own. One examination of flooring options, however, notes that vinyl flooring (and vinyl-coated wallpaper) were found to be seven times more likely to contain hazardous additives than other "non-plastic" flooring examined. Safer flooring choices include ceramic and stone tile, real linoleum, cork, hardwood and bamboo.
When building or remodeling, every product choice has an impact on the people who enter the building. An attempt to save money at the time of installation can have huge costs later. Let's value the health of people who enter our churches and homes enough to take the issue seriously.
How Does Someone Become Chemically Sensitive?
It seems likely that chemical sensitivity has a variety of etiologies, similar to the way that nausea may be caused by such diverse factors as food poisoning, chemotherapy, and pregnancy. At the heart of the matter, however, is generally a problem with the body's detoxification system. When people are unable to fully process toxins they accumulate and cause damage and symptoms.
Despite the determined efforts of some to paint MCS as a psychological disorder, there is no shortage of evidence proving it to be a very real physical condition. For instance:
Animal models point to a physical cause. Studies show that animals exposed to repeated low levels of chemicals over a period of time can become extremely reactive and sensitive to minute traces of those chemicals.
People who became sick after exposure to certain chemicals in Operation Desert Storm were found to have lower amounts of a specific enzyme than others who had higher amounts and weren’t sickened.
Women with a genetic profile involving two genes associated with detoxifying toxic compounds were found to be over 18 times more likely to have MCS compared to women with a different genetic makeup. Women with variations in just one of the implicated genes were also more likely to develop chemical sensitivities.
Genetic abnormalities can themselves be caused by chemicals. Many chemicals are capable of mutating genes or turning them on or off.
Lab tests of some MCS sufferers reveal abnormal activity in one or more of the eight enzymes involved in heme production. (Heme is the primary component of hemoglobin in red blood cells.)
Nasal abnormalities consistent with chronic inflammation have been found in patients with MCS. Damaged mucosa enhances absorption of inhaled chemicals, and often permits rapid entry into the brain.
Testing often shows people with chemical sensitivities to be “pathological detoxifiers” in which Phase I of liver detoxification is faster than Phase II, leading to a buildup of toxic metabolites in the body.
Groups of independent researchers have found distinct abnormalities of brain metabolism in people with MCS. The neurotoxic pattern is very different from the abnormalities reported in psychiatric disease.
Tests measuring blood flow to the brain (SPECT scans) show differences between MCS patients and normal controls. MCS patients demonstrate severe deterioration when they are challenged by chemicals in concentrations found in everyday situations.
Certain people may be more likely than others to become chemically sensitive, but no one is immune to the danger. We all have finite bodies capable of detoxifying a limited chemical burden, and it's impossible to know who might be one exposure away from exceeding that limit. Although it's wise to reduce and eliminate all chemical exposures, some substances are especially likely to set people on the road to MCS. These are known as "sensitizers." Pesticides and formaldehyde (found in many personal care, cleaning, building, and furniture products) are known sensitizers that are very important to avoid.
People with chemical sensitivities need your help to function in this world. Those without chemical sensitivities need your help to stay that way. You, yourself, may be one chemical exposure away from developing MCS. Reducing chemical exposures is the right thing to do for everyone's sake.
For more information:
http://www.environmentalhealth.ca/Ross2000.html
http://www.sciencedirect.com/science/article/pii/S0041008X99987033 http://www.nettally.com/prusty/case-control%20study.pdf http://www.environmentalhealthnews.org/ehs/news/epigenetics-workshop http://www.mcsrr.org/factsheets/porphyri.html http://www.mcsbeaconofhope.com/meggsa2.html http://www.digitalnaturopath.com/treat/T355089.html
Fragrance Facts
On May 22, Pittsburg, Pennsylvania will celebrate “Fragrance Free Day,” following the lead of cities like Las Vegas who have held similar events in the past. Why go to the trouble? Why is the issue important? Just what is "fragrance" anyway?
God has filled this world with a variety of pleasant-smelling flowers, foods, and other natural delights. Today, however, the word "fragrance" generally refers to synthetic concoctions found in consumer products. An article entitled Scents and Sensitivity, originally published in the journal Environmental Health Perspectives, notes that an estimated 3,000 chemicals or more are used in the manufacture of fragrances, A single fragrance may contain several hundred of these.
A compilation of fragrance facts titled Making Sense of Scents notes the following:
The National Academy of Sciences reports that 95% of chemicals used in fragrances are derived from petroleum.
Many of these chemicals are known to cause cancer, central nervous system disorders, allergic reactions, and birth defects.
A large percentage (84%) of fragrance chemicals have been tested only minimally for human toxicity, or have never been tested at all.
Some of the chemicals found in fragrances have been designated as hazardous waste.
The fragrance industry isn't regulated by any agency.
Synthetic fragrances saturate our culture for many reasons. One is that olfactory fatigue (the inability to detect an odor after prolonged exposure to it) leads people to continually increase the amount of fragrance they use. Fragranced products are also the rule rather than the exception because manufacturers add synthetic perfumes to cover the smell of other chemicals in the formulations.
It's unfortunate that being fragrance-free in our culture takes some intentionality, but it's worth the effort. Every personal fragrance-free day contributes to better health for everyone. Every purchase of a fragrance-free product also sends a message to producers and distributors. Let's send the message. Let's take this seriously.
Who Regulates the Products We Use?
It's surprising to many people (it certainly was to me) to learn how many products make it to our store shelves without being tested for safety. I always assumed that either the EPA (Environmental Protection Agency) or the FDA (Food and Drug Administration) was in charge of regulating such things as personal care and cleaning products. Nope.
The government's own FDA website has a page entitled What FDA Doesn't Regulate. Here's what they have to say about "consumer products":
"The agency has no jurisdiction over many household goods. The Consumer Product Safety Commission (CPSC) is responsible for ensuring the safety of consumer goods such as household appliances (excluding those that emit radiation), paint, child-resistant packages, and baby toys."
See some things left out? How about the EPA? They say this:
"EPA has no authority to regulate household products (or any other aspect of indoor air quality). . . .Even if we had authority to regulate indoor air quality, it would be difficult to regulate household (or other) products because we have no authority to collect information on the chemical content of products in the marketplace (nor does any Federal Agency)."
If governmental agencies don't have the authority to protect us from toxins in common products, our choices are to either trust the manufacturers or do our own homework. This is more challenging than you might think, due to inadequate labeling laws (a topic I'll probably address in a future post), but is still both possible and necessary. Some basic Christian principles include taking care of our bodies (1 Corinthians 6:19-20) and loving our neighbors as ourselves (Matthew 22:39). Knowing whether the products we use are toxic to ourselves and those around us is part of that.
Yes, it's a pain. Yes, it's easier to just buy what's cheap or what removes stains with the least effort. But doing our homework on this issue matters. It matters a lot.
How Many People are Unusually Sensitive to Chemicals?
A surprisingly large percentage of ingredients found in common products are untested, unregulated, and potentially unsafe. Sometimes people know that certain products cause them problems ("Strong perfume gives me a headache"), but often they don't think to associate a symptom with a chemical trigger.
Given that fact, it may be surprising to realize how many people self-identify as being unusually or especially sensitive to everyday chemicals. Studies of the general population have found rates that vary between 11 and 33 percent. The study that found the lowest rate (11%) asked separate questions in which 31% of respondents noted an aversion to scented products and 18% reported negative physical reactions to air fresheners.
Do you believe those statistics? A lot of people evidently don't. There are reasons for the fact that chemical sensitivity is a largely hidden problem. Those who are most seriously affected by MCS must avoid the chemical exposures associated with public gatherings and as a result rarely come into contact with the general public. There are also reasons that those with lower levels of chemical sensitivities are sometimes hesitant to make their condition known.
Very often, people are afraid that talking about their chemical reactions will offend or inconvenience people, who may take requests to change their personal care products, for example, very personally. They often make the choice to pay a physical price to avoid that scenario. Also, MCS is not only poorly understood, but often ridiculed, so people may fear that speaking of their chemical sensitivities will earn them a label of crazy or manipulative.
If close to a third of the population identifies as being unusually sensitive to common chemicals or at least expresses an aversion to scented products, is it worth noting? Is it possible that a few simple changes to a church building or other establishment could make a big difference for many people? The issue of chemical contamination is a big one, but removing or replacing synthetically fragranced products is an easy place to start. Why don't we do it? If the issue is disbelief of the extent of the number of people who are bothered, why not ask? Poll your congregation or small group. Those who are most sensitive are probably staying away, and many who are being affected by chemicals probably haven’t yet made the connection. Still, I bet you'll be surprised at how many know they have reactions. They’ll be glad you brought it up.
The Great Blog Dilemma
To blog or not to blog; that is the question. To date, my internal dialogue has gone something like this:
Reasons Not to Blog
I have MCS (Multiple Chemical Sensitivity), Lyme disease, and mold illness. It scares me to make commitments because I can't guarantee I'll be functional enough to keep them. Can I keep a blog going? Can I manage to post on a regular basis? When I'm not feeling well can I manage to be coherent? I'm sure healthy people have a hard time understanding the fear of not being up to typing out a few thoughts, but I know those readers with chronic illness understand.
Choosing to blog means choosing to divert time and energy currently spent on other things. What do I give up? I'm currently unable to sleep in my house (a surprisingly common MCS problem). If I blog, it means I have less time to work on making my home safe for me.
The internet is full of blogs and blog carcasses. Does it need another? Will anyone find it? Will anyone read it? Will it make a difference in any way?
Writing a blog that's primarily about MCS issues means forcing myself to think about things that can be very depressing. Is it worth doing that to myself on a regular basis? Do I want to mentally camp out in such a barren place?
Reasons to Give it a Shot
I think perhaps this is something God would like me to do, at least for now. When I was praying about it recently, God's words to Gideon in Judges 6 spoke to me. Gideon was complaining about the state of affairs and God gave him a commission to act, saying, "Go in the strength you have."
The Literary Powers That Be tell me that living a blog-free life isn't an option. I've written a book that I haven’t quite figured out what to do with, yet. Whether I come up with the money to self-publish, manage to find a traditional publisher, or decide to just put the book up online somewhere, I’ve gotten the message that a blog needs to be part of the package.
I have something to say. Much of what I have to say pertains to MCS and the Christian church. Becoming part of the MCS community opened my eyes to an unseen world of Christians who are completely shut out of most church buildings and gatherings because of the common products people choose to use. That isn't OK. Christians are also unknowingly making themselves sick with the same products, and that isn't OK, either. Worst of all, there are people who are spiritually hungry who can't search for truth inside most Christian churches because chemicals shut them out. That really isn't OK at all.
The fact that you're reading this answers the question of what I finally decided. I'm blogging. See Martha blog. I have no idea where this is going to go, but I really appreciate you coming along for the ride.